Wednesday, May 1, 2013

Be Proud of My Son

It’s been 63 days since Alex completed his four month therapy program at Euro-Peds and it’s been 63 days without therapy for him. As usual, there were “issues” with the paperwork for our secondary insurance that put us on hold for this long. I mean issues as in human error if you catch my drift. There is nothing more frustrating for me as a parent of a child who NEEDS this therapy to have to sit and wait for people to do their job. There is no excuse for it to take this long, and I wish I had other options, but I don’t… so I sit and wait.

The wait finally came to an end today when Alex returned to therapy this morning. We got a lot of good results from the Euro-Peds program so I am expecting a little more from his current therapist. Alex is going to be 3 in a few months. He sits ok, rolls really good and is looking like he wants to crawl now but his core (trunk) strength is still lacking. He has come a long way in the last 6-8 months. It used to be really hard for him to sit in a shopping cart or a high chair at a restaurant. He is now doing both of those things very well. Now that we are out walking again, seeing him in the wagon is awesome! He doesn’t slip down and has such nice control of his trunk.

There are many things I would like Alex to accomplish and I know in my heart that he will. It may not be alongside other kids his age, but I truly believe in my heart that he will do it. If for some reason he can’t do something, oh well it’s not like it’s the end of the world.

Some people have made comments to us about how hard it is going to be for him and for us as his parents having to take care of him for the rest of his life. REALLY? He isn’t even three years old. We don’t even know the HALF of what he is going to be able to do yet because he is young and still learning. As his mother, I will take care of him until the day I die and it won’t make a difference to me because he is my child and I love him unconditionally and would do anything for him. Those same people also don’t fully understand why the specialist(s) we take him to are important and how crucial his Physical and Occupational Therapy are. Those people don’t know what it is like to parent a special child.

Alex’s CP is merely an obstacle. Yes, certain things will be harder for him in life but it doesn’t mean that he can’t live a full life. These are the cards he has been dealt and as his parents, Eric and I are going to give him the best life we can. He is also very fortunate to have a twin brother like Evan.

So I ask that you be proud of my son for all he has accomplished and be supportive of what is to come. He is an amazing little boy who is full of life, full of love and deserves a chance just like everyone else.

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