My little heartbreakers

Last week in Alex’s PT session we tried out a new gait trainer called the Mustang. It was super nice and we are waiting on a script from the Doctor so we can go ahead and place the order. This trainer will help Alex become more mobile as well as help him stand a little more often than he does now. He didn’t do a whole lot of walking in it that day, but it seems like a nice fit. It glides nicely and looks comfortable for him. It’s a very long process with insurance approval but I am hoping we have it by June so he can roam around outside with it.

We also saw the Physiatrist last week as well. I don’t know who these specialists think they are, but I have had just about enough of them. If you recall, our last appointment with this guy didn’t go well either and this was just the icing on the cake for me. We waited 45 minutes to get into his office for him to just rush us right out of there. Back in December he suggested that Alex wear his Benik vest a little more often to see if it helps with sitting and he wanted to order him night splints and do some exercises on the ball with him. He made NO mention during our appointment last week of any of these things. He never asked us how things are going or if we should continue or not. He just suggested yet ANOTHER brace for Alex and mentioned how his feet cross/scissor when he stands him up. Alex rarely crosses his feet when we stand him up. Yes, his feet are very close together, but they don’t scissor. He went on and on about this and how he doesn’t know what our PT is doing and if she is working on this issue or not. Well, he should know because she sends him reports, but I am sure he reads those just as well as he reads Alex’s chart.

We are going to this guy so that he can help guide us through this process with Alex but every time we leave there, we leave unsatisfied and confused and it shouldn’t be that way. So, we have decided to switch to the other Doctor in the area and see if we have better luck with him. I am planning on making that appointment in the next month or so. This is such a ridiculous process just to get a little guidance and help with our little boy but no matter how frustrating it may be I will never stop fighting for him.

When we left the appointment, we took the boys to lunch and then to the mall to walk around. Evan is quite the little ladies’ man. He was flirting it up with the girls working in the stores and even went into one store and bee lined it to the fitting rooms! He is hilarious! These girls just eat it up – they love him! Don’t think Alex is left out, he quietly sits in the stroller and after Evan makes his grand entrance they turn to Alex and he flashes his million dollar smile and melts all of their hearts. I think I may have two little heartbreakers on my hands.

Those little heartbreakers are 21 months old today. I can't beleive it.