Today is a big day in the Williams household. First and
foremost it is World Cerebral Palsy Day which means a lot to us for so many
reasons. In my four years of learning about CP and advocating for Alex, I have
seen how little research is actually done with this disability. There are over
17 million people in the world living with CP and it just blows my mind that
there is so little to go on. It just
seems like no one has any answers and everything is all a guessing game or a
wait and see kind of game. Hopefully dedicating a day to this will bring more awareness and future research.
I am not sure about other areas of the country – and I could
be wrong in saying this, but there is nothing here in Michigan that I have
found that directly raises money for Cerebral Palsy. There are a list of other
disabilities that have walks and runs and fundraisers that are held, but I have
found nothing in four years that would include us as a family to raise money for
CP Research. With so many individuals in the world affected by this, why
wouldn’t there be more out there? The only thing that has brought awareness to the area was the boy who carried his brother (who has CP) 40 miles. http://www.cbsnews.com/news/michigan-boy-carries-brother-with-cerebral-palsy-to-raise-awareness/ I think this is a great story - as are all CP related stories, but there needs to be more.
So, cheers to my beautiful son who is living with Cerebral
Palsy, cheers to me and my new job and cheers to October; the best month of the
whole year!!
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