There are so many dates that reside in our minds...holidays, birthdays, anniversaries and for me...today: August 13th. Three years ago, Eric and I were given news that would forever change our lives: Our precious son who was exactly four weeks old on that day experienced oxygen deprivation at some point and as the ultrasound showed, had brain damage. PVL it was referred to and it would undoubtedly lead to Cerebral Palsy.
That was the only concrete answer they could provide us. Everything else was crap. The Doctors dropped a bomb on us and then left us hanging. I was crushed, I cried for days but there was no way in hell I was going to give up and let this get the best of me.
Fast forward to today: August 13, 2013. Alex has since been diagnosed with Cerebral Palsy; he has surpassed some milestones and has yet to accomplish others; he is beautiful, strong and all around amazing. He works harder than most people I know to do things that we don't even think twice about. He gets frustrated but pushes forward and there isn't a day that goes by that he doesn't laugh. I could listen to him laugh all day.
He isn't walking or talking just yet, but he understands a lot. I can see it in his eyes. He especially loves his brother who he not only laughs with but fights with as well.
I look back to those dark days after finding out about Alex and his brain damage and that time seems so distant now. We have so many wonderful memories as a family and what he has accomplished through therapy is so amazing. We try not to look to far into the future, we just take one day at a time.
He has changed my life; he is my little hero. I hope he knows that he has the biggest and best support system there is. Eric, Evan and I will always believe in him and always encourage him to believe in himself. His CP will not hold him back from experiencing the best of life. He deserves it just as much as the next person...if not more.
WATCHING ALEX GROW
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6 Weeks |
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6 Months |
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10 Months |
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17 Months |
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22 Months |
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2 Years |
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3 Years |